Shannon's Crazy Cancer Finger Diaries

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Shannon's Crazy Cancer Finger Diaries Mom of 3, L&D RN, and kicking Ewing Sarcoma's Ass currently! So here's the back ground. In January 2012 my kid had this tornado toy. FYI that is not a good sign.

One of those little PVC pipes that hooks two 2 liter bottles together to make a tornado. Well one of the bottles got crunched. So I tried to untwist the bottles apart, the next day my middle finger was big and swollen. I taped it up like a good nurse who hates going to the doctors for something so dumb. I just thought I strained it and how dumb would that look going to the doctors over a strained

middle finger. Then in April 2012 I bought, for the very first time in my life, brand new living room furniture. I worked my ass off to have the money to pay cash for my furniture and shopped all around for the best deal. Then when I bought it I carried my lovely new couches into my house and the next day I couldn't move my finger at all. This time I did go to the doctors because it hurt and this swelling was bad. After X-rays and an MRI all we could see is there was swelling, blood, fluid, and this small dot on my middle finger. So small biopsy was unable to do because they would most likely miss it. So small that they asked me to not be alarmed but did anyone in my family ever have bone cancer. No, no one ever had and yes I was alarmed. My finger got better in a week and I went thru a series of rechecks and re-xrays and two different hand surgeons who were all just as confused as me. In the end in July 2012 I had one last x-ray, the spot was still the same the swelling never came back and I was released to not have a return visit unless it hurt again. Then in February 2013 my middle finger started swelling out of no where again. First it was if I worked, then I would wake up with it sore. Then it swelled just driving my car so I made a return appointment. The day of the return appointment as I put my coat on to leave I was thinking god this is dumb, a swollen finger and I'm headed back to a doctor. I was sure I would be told it was nothing that my finger was just fat like the rest of me. Then as I put on my coat I caught my finger on the sleeve and the pain was horrible. It was so bad it knocked me to my knees and I yelled in pain. From then on anytime I moved my finger it was like someone was smashing it with a hammer and I just wanted to vomit. So I womened up swallowed my pride and went to the doctors. One X-ray later I was being talked to again by a hand surgeon who said the spot that was tiny last year is now the size of a jelly bean on the xray and I was being sent to a hospital to have an MRI and I would return on Monday to see the surgeon. During the MRI the radiologist came into the room as I was getting off the table and asked when was my last xray and how fast could he see it. I explained what had happened with my hand and he said make a return appointment ASAP that this MRI was 100% different from last year. On Monday that week I had an appointment where my usually perky PA and MD told me they thought I had cancer. I wanted to tell them not to worry I would be ok because they both looked so sad. I was told I needed to go have a full body bone scan to see if I had spots anywhere else and have a CT of my arm and that on Thursday I was having the tumor removed. I was told that if it was cancer and an aggressive cancer I would wake up without a finger. Because the tumor is already invading the pulley tendons in my finger. All I could do was sit there. Shake my head ok, agree with the plan and schedule all my visits. As I walked out of the office that day I teased the Physicians Assistant Sophie that I wanted a cool story to go with this. That I just didn't want to be the girl who's finger swelled up and grew a tumor from a tornado toy. That I wanted to tell people I rescued kittens from the alligator at the zoo or something. Well I guess I got what I asked for. I am now the adult who is way to old to have Ewing Sarcoma. The second rarest childhood cancer. Only 200 cases a year are diagnosed and all of them under 19 years old. That's what oncology said at my first visit. Now I am an adult who is going to be treated by pediatric oncology with the help of adult oncology and the help of 3 hospital systems. Thank God I went back for a dumb swollen finger, and thank you God for giving me great doctors for this interesting journey we are on. And Sophie, I guess I got my cool story I asked for!

Cheers to 2026 being a great adventure full of love and prosperity.
02/01/2026

Cheers to 2026 being a great adventure full of love and prosperity.

22/11/2024

4,284 days and still cancer free. And just transfer jobs about a month ago to be an Oncology Nurse!!! Super Excited!

05/08/2024

4176 days after diagnosis & still cancer free & enjoying life!

24/12/2018

Christmas is not about presents people will forget next month or trees that will soon die. It is about family. And my little family here will be celebrating like always eating all our favorite foods and tons of cookies, drinking way to much sparkling apple cider, watching goofy movies, having a warm fire, and being together. There will be a few small goofy gifts. But the best gift of all is this week I get to celebrate being 5 years post chemotherapy!! I had scans last week and I am officially 5 years with no evidence of disease! I won’t be called remission for a while longer they say because my sarcoma grew between tissue types (bone, tendon, and soft tissue). I will also continue to have every 6 month appointments and yearly scans for the rest of my life they say and that is fine. Because every year of scans means one more Christmas to spend with my babies and that is worth more than any gift in the world!!

01/03/2018

I haven’t been on here much because well I have been busy living life up!
Today is a day of huge celebrations!
Today is my 5 year Cancerversary!!!
5 years ago today I was diagnosed with Ewing Sarcoma and my whole world changed.
That means I am 6 years past the first time we saw that dam spot on an X-ray! Today I celebrate I had a wonderful doctor and amazing physicians assistant who listened to me when I complained my finger hurt! Sophie Rollins Ellis and Benjamin Jacobs at Rebound Sports Medicine I owe you both my life!! Today I celebrate the amazing team that worked to save my life! And I celebrate I kicked cancers ass!!
I made it!!! I know I don’t get to celebrate 5 years year clean technically until December 12th when I finished chemo but today I celebrate 5 years of kicking cancers ass!!! Today I celebrate 1,539 days cancer free!! May there be many many more seconds, minutes, days, weeks, months, and years in my future Cancer free to celebrate!!

Thank you chemo, doctors, nurses, and surgeons for keeping me alive so I could see this day! My baby graduating from 5th...
16/06/2017

Thank you chemo, doctors, nurses, and surgeons for keeping me alive so I could see this day! My baby graduating from 5th grade. May there be many many more memories to come.

15/04/2017

2013 was a horrible year. Cancer, sepsis, amputation, cat died, dog died, lost my job, and on and on. But now 2017 seems to be the great year to make up for it all. I have a great new job I love, my health is great, my cancer remains gone, and today I'm going to go tour at a new home to see if I want to buy it.
2017 your a a great year!! So at 10 am today send your positive thoughts that I will love this house and they will accept my offer. This new house is a place not just for me but my whole family to live in, enjoy life, and celebrate life!

09/03/2017

10:30 am tomorrow repeat CT scan to see what the heck these lung and adrenal gland spots are all about. And then Friday port-a-cath placement for this darn hemochromatosis blood draining. Oh what a fun week I have planned.

01/03/2017

Officially lived 4 years past my diagnosis today! Life is great!!

24/02/2017

I have decided that this girl needs a different pace for work & I am leaving my hospital labor & delivery nurse job for an OB/GYN clinic position.
Post cancer a lot of little things in life have such a different perspective. I want more time at home. This new job will give me that. I want time for hobbies & family & day trips to the beach.
I don't want to worry about lifting injuries. I want to make friends with families we will see for months & years. I want to see their baby pictures & not be the one resuscitating their baby.
I want Monday thru Friday 4 days a week no holidays no weekends.
I want to be home in time for dinner with my kids.
I want to wear cute scrubs not hospital blues.
And most of all I want a job that if this evil cancer ever came back I could still work while I fought this beast.

17/02/2017

I have to have another CT scan because they found a spot on my left adrenal gland & want a closer look at 2 spots in my left lung they have been watching for the last 4 years. I also need to get a port-a-cath placed again because I'm running out of veins & my iron levels are to high & they are again destroying my platelets. Oh joy. Isn't my life fun.
On the brighter side 9 days till my vacation get away!!!

15/02/2017

tomorrow 7:30 am positive thoughts people, I have another CT chest scan as part of my post chemo surveillance. Then in 10 days I will be off to celebrate 4 years ago that they caught this evil beast Cancer & I started kicking its ass!!!

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